Solidarity Work:
Researchers in the Struggle for Social Justice*
Elliot G. Mishler & Vicky Steinitz
Harvard Medical School and University of Massachusetts-Boston
* Presented at the 14th Annual QUIG
Conference on Interdisciplinary Qualitative Studies, Georgia Center for Continuing
Education, University of Georgia, Athens, Georgia, January 12-14, 2001.
Prepublication draft: Please do not cite or quote without authors' permission.
Introduction
E: Vicky and I are very
pleased to be here. We would like to thank Kathleen deMarrais, David Kurtz, and the
Qualitative Inquiry Group at the University of Georgia for inviting us to join you in
discussing how we can make the work we do - as teachers, scholars, clinicians, and
researchers - relevant to and informed by the collective struggle for social justice and a
more humane society.
We wish to dedicate our presentation to the memory of Ignacio Martin-Baro, the Salvadoran
Jesuit priest and social psychologist who was assassinated by a death squad in November
1989, with five of his Jesuit brothers, their housekeeper and her daughter. He was an
inspirational figure for all of us who met and learned from him about the destructive
psychological and social impact of state-sponsored war and violence on children, their
families, and communities. In his posthumously published volume of papers, "Writings
for a Liberation Psychology" (Martin-Baro, 1994), he asks what psychology might look
like if we based our work on the "preferential option for the poor" advocated in
the liberation theology movement. In contrast to a reactionary psychology "whose
application lends support to an unjust social order," he argues that if our aim is to
serve the "liberation needs of people," we need to ally ourselves with poor and
oppressed groups in their struggles for justice and dignity and develop a progressive
psychology that helps people "find the road to their personal and collective
historical fulfillment." (p. 24)
V: We decided to do this
presentation together in a rash moment. Elliot and I share political commitments but our
identities as researchers differ considerably. At best, I am an ambivalent researcher,
always wondering whether a project is worth doing and what kinds of payoffs it will have
in advancing the educational and political ends which are my primary interest. Elliot's
primary professional identity is as a researcher, and particularly a methodologist. He is
fascinated by a wide range of inquiry issues, theoretical arguments, and methodological
questions. As long as someone is passionate about a research problem, he will take the
work seriously. I dismiss much research out of hand as unnecessary and of limited value.
So, we thought it would be fun and challenging to see if we could find a way to dialogue
about the role of researchers in the struggle for social justice.
One thing we did agree on from the outset was that we were uncomfortable with the typical,
formal keynote address with us as the "come-from-aways," the invited speakers
peddling a set of truths, and you as the audience sopping up or privately scoffing at our
offerings. As a first step toward opening a broader dialogues, we would like you to take
two or three minutes to share with a person sitting next to you your reasons for coming to
the conference and a question or dilemma you face in your research which you hope will be
addressed.
Sharing Time ..
E: Despite the reservations
Vicky expressed for both of us about our role as designated speakers, she and I will be
passing the baton back and forth for awhile before we open our dialogue to our collective
discussion. But we hope that having voiced your questions and concerns at this early
point, you will be especially attentive to whether or not, and how, we address them so
that the discussion will be anchored by your interests. Since, as she observed, we have no
truths to peddle, we will focus on some dilemmas faced by researchers doing solidarity
work for which we have no resolutions, but which we may all gain a deeper understanding of
by learning from each others' experiences.
When I first began thinking of what I might have to say about the the relation of
qualitative research to issues of social and economic justice, a memory surfaced of
spirited discussions with friends when we were finishing our undergraduate studies and
heading off to graduate training in psychology and the social sciences. As political
activists, we had visions of how we would use our soon-to-be-gained skills as scientific
researchers to help change the world. At the center of our debates and arguments with each
other was the question of whether there were ways of doing research so that the findings
could only be used by the good guys for good purposes. Briefly, and to our disappointment,
our answer was "No." This was not because we believed that scientific research
is objective, neutral, and independent of political positions and social forces, but
because it was evident that the same findings could and were used for different and often
opposed political ends.
In retrospect, I think my friends and I as neophyte social scientists framed the question
incorrectly. The basic issue in regard to whether or not our studies can be useful in the
struggle for social justice does not have to do with the reliability or validity of our
methods - nor, to bring the point home to our conference theme - with whether we do
qualitative or quantitative research. Rather, it has to do with the form of relationship
we establish with the groups and movements with whom we ally ourselves, the nature of our
collaboration with them in carrying out our studies, and how we negotiate ways to combine
our different interests to make our findings useful and relevant to our shared political
aims. This is what we mean by solidarity work. We will present examples of different types
of solidarity work, beginning with our own experiences and then reporting work by others,
focusing particularly on recurrent problems and dilemmas in such projects. Our basic
question is: How can we learn to be of use in the struggle for social justice?
Welfare Waiver Open Letter and Affidavit
E: People doing solidarity
work use various labels to describe their roles: e.g., activist scholars or researchers,
academic allies, emissaries, advocates; and such terms as "pragmatic solidarity"
or "partnership" to refer to the type and level of collaboration they enter into
with others. These are fuzzy and overlapping categories, but they point to the boundaries
between researcher and activist roles, and to the different aims and intended audiences of
our studies. Advocacy, which we might gloss as acting for others on behalf of their
interests, is the most common form of solidarity work for academic scholars and
researchers, sometimes mixed with some degree of partnership, that is, working with
others. I want to begin with brief reports of two examples of work Vicky and I were
involved in where advocacy was the dominant mode. The primary aim of these efforts, as in
much of the research undertaken as part of solidarity work that we will review, was to
counter the "official story." In these examples, as in Vicky's work that she
will discuss, that focus on the impact of the new welfare reform laws, the aim was to
undermine the stereotypes of poor women on welfare and to document the false and
misleading claims in both government and media reports about the positive effects of
welfare laws and regulations.
In the Spring of 1995, the assault on the existing U.S. welfare system by the conservative
Republican-controlled congress was well underway. In Massachusetts, the governor and
legislature were eager to be in the forefront of the stampede by politicians in other
states to demonstrate how harsh and punitive they could be towards poor women and their
families. A new state law reduced benefits to welfare recipients, imposed work
requirements, and set more stringent requirements for eligibility.
These changes violated federal guidelines about what states could and could not do with
regard to benefits and eligibility. But Federal legislation also allowed waivers to these
guidelines for small-scale demonstration projects. The guidelines for such waivers
mandated careful assessment of both positive and negative effects through pilot or
experimental projects before changes were applied to the whole population of welfare
recipients. The state submitted a waiver request that did not meet these mandated
requirements. We joined other members of an inter-university Academic Working Group on
Poverty in the task of developing critiques of the waiver request. As one part of this
collective effort, Vicky and I drafted an open letter to the U.S. Secretary of the
Department of Health and Human Services - which we also circulated to various political
leaders and the media - detailing how it failed to conform to ethical and scientific
standards for "experiments." In one week we collected signatures in support of
this statement from more than 260 academics in Massachusetts.
At the same time, the Massachusetts Law Reform Institute, an advocacy group of lawyers,
was preparing to file a brief in the courts for an injunction against implementation of
the state law. They asked me for a supporting affidavit that would document how the law
failed to meet ethical and scientific standards for research. In preparing that statement,
I relied considerably on what sociolinguists would call the rhetoric of authority. I
highlighted my academic credentials, my long experience of doing research, my years as
Chair of my department's human subjects review committee. I traced the history of current
regulations for the protection of human subjects in research from the Nuremberg Code
through pivotal studies that led to these regulations, which showed how members of
vulnerable and powerless populations had been exploited and put at risk without their
consent. I referred to the concept of a risk-benefit ratio as the criterion for evaluating
whether or not a study met agreed-upon ethical standards. And I specified how the state's
proposal for an evaluation study, which was part of its waiver request, failed to meet
scientific and ethical standards and would not provide information that would allow
assessment and comparison of the benefits and harmful effects of their "welfare
reform demonstration."
Approval of the waiver request was delayed for a period of time and we would like to think
our efforts, along with those of many others, had some effect on the approval process. But
the whole issue became moot when the so-called welfare reform law was signed by President
Clinton in August 1996, which pretty much allowed states to do what they wanted with their
block grant of federal funds.
What lessons might be learned from this example? Both the open letter and affidavit were
similar in their arguments about the violation of ethical and scientific standards in the
Massachusetts law. They were also fairly pure examples of advocacy - of acting for but not
with welfare recipients. The intent of the letter was to mobilize the academic community
in the struggle against unjust and punitive welfare legislation. And in preparing the
affidavit, I drew upon an academic discourse about research. Although both the Academic
Working Group on Poverty and the Mass Law Reform Institute were engaged in other forms of
alliance with welfare recipients and activists, the letter and affidavit were isolated
from this larger context. We did not ask welfare recipients or activists to participate in
their preparation or dissemination. Their voices were not included and, looking back on
this episode, their voices appear to have been explicitly excluded by our implicit
assumption that they would have nothing to contribute to a technical argument about
scientific ethics and research methods. It is no wonder - though we were naive enough at
the time not to expect it - that when we asked an activist group of welfare recipients for
help in getting names of academics who might sign our letter, our request received an
angry reply. They had not heard of what we were doing, had not been asked to join in
preparing the letter, viewed us as arrogant in speaking for them.
I believe advocacy has an important place in the range of ways to do solidarity work, but
this was an instructive experience. Opportunities for academics to engage in some type of
advocacy are, in a sense, always there to be taken up, e.g., directing our studies and our
courses to issues of inequity and injustice, offering our expertise to activist
organizations and civil rights lawyers, publicizing our views and research findings in
local newspapers through Op-Ed pieces, and in many other ways. But in doing such work, we
need to be aware of the dilemma I have been pointing to - that those we claim to be
speaking for may feel they have been again excluded from a process that affects them
directly and denied their right to speak and act as agents for their own interests.
We have no easy one-shoe-fits-all resolution to this problem - different situations
require different context-relevant strategies. Nonetheless, it seems to us that a
necessary though not sufficient condition for minimizing such conflicts is to have
established connections with the people for whom we are advocating that provides a basis
for trust, and for dialogue and negotiation about what we and they are doing. This could
take many forms, e.g., joining them in political acts of protest they organize, from
demonstrations to civil disobedience; offering professional services, resources, or
expertise that may be useful either to their organizing activities or to their efforts to
deal with the official system of regulations and services. All of these show concretely
that we are standing with them and not just speaking for them.
Human Rights Welfare Monitoring Project
V: . We undertook the advocacy efforts Elliot described at a moment of defeat
and outrage for the welfare rights movement. After many years of struggle by a broad based
coalition for authentic welfare reform, the Massachusetts legislature had just passed
repressive welfare legislation, far harsher than anything we had imagined. Unable to stop
implementation of these new regulations, we turned to the question of how to document
their impacts. I decided to use the Universal Declaration of Human Rights as a framework
for evaluating the effects of the new policies and to model my work on the methods of
international human rights monitors.
Before I describe the Welfare and Human Rights Monitoring Project in some detail, I want
to talk briefly about an earlier aborted interview study of welfare recipients. I became
an academic ally of the welfare rights movement as the War on the Poor intensified in the
90's and more and more of my students on welfare were finding it harder and harder to stay
in college. . From its earliest days, my college, the College of Public and Community
Service (CPCS), an alternative, competency based college for non-traditional, urban adult
students, has been active in the welfare rights struggle. Prior to the new laws, we had
always had a sizable group of students on welfare and a curriculum aimed at fostering
political activism. And the students were active on their own behalf. For example, a group
of welfare student moms formed an activist organization that fought successfully to have
the college accepted as a site where students receiving public assistance could fulfil
their educational and training requirements.
With the relentless scapegoating of welfare moms taking its toll, I was searching for a
way to become more active in the struggle. As a social psychologist with a longstanding
interest in attitude change and ideological development, it was obvious to me that the
other side was winning the propaganda war. I began conversations with leaders at the
Coalition for Basic Human Needs (CBHN), the major recipient-led state-wide organization,
about ways to counter the negative media images. They asked me to do a series of in-depth
interviews with recipient activists which could convey the complex realities of their
lives, the difficulties faced by women on welfare and their heroic efforts to make a
better life for themselves and their children. My task was to generate positive portraits
for media dissemination and I accepted it with alacrity, believing I had found a way to be
of use.
It wasn't long before I had to confront Elliot's conundrum. It just isn't possible to do
research that can only be used by the good guys and gals for good purposes! My
interviewees were resourceful women who had faced devastating difficulties but developed
strategies for making their way. They knew that without a college degree they were
consigned to low wage, unstable jobs and so some had chosen to stay on welfare in order to
complete their schooling. They knew that without a strong recipient-led movement, they
would be at the mercy of liberal do-gooders and so they had become outspoken activists.
While to me their stories were hero stories, I knew they would not be read as such by the
vast majority of American readers who are moved by accounts of the 100 Neediest Cases but
made uncomfortable by tales of "uppity" poor women who think they have a right
to define the terms of their lives. After a series of difficult meetings with CBHN leaders
in which I tried to explain why I didn't think it was possible to frame their stories in
ways which would be viewed sympathetically by a mainstream audience, we agreed to
terminate the project.
This experience crystallized for me the dilemmas involved in characterizing what counts as
a positive or negative finding in the world of solidarity research. Of course, I favor
exploration of strengths and coping strategies and deplore studies based on deficit models
which only serve to re-victimize their respondents. Yet, I also know, as Gordon Allport
pointed out long ago in The Nature of Prejudice, that scapegoaters are remarkably
deft at turning anything positive into a negative. Thus, it is virtually impossible to
craft a positive account which can't be misinterpreted, willfully or otherwise.
The "transforming positive into negative" dilemma surfaces over and over again
in our efforts to figure out what kinds of data will have the impact we desire on public
and official opinion. A recent example is the controversy over Kathryn Edin and Laura
Lein's study of how welfare recipients manage to survive, given the woefully inadequate
benefits they receive, reported in Making Ends Meet. (Edin & Lein,1997) While
many have hailed this research as the first in-depth account of the economic coping
strategies of welfare moms, others, myself included, believe that it provides ammunition
to the enemy. Detailing how women cobble together enough money to keep going thru a
combination of support from fathers and other family members, under the table jobs, and
prostitution can be read as a tale of resourceful determination in the face of adversity
but it can also be read as a tale of welfare fraud, particularly by those who refuse to
acknowledge that it is impossible to survive on a welfare check.
Flash forward to 1995 and the immediate aftermath of the harsh new Massachusetts'
legislation. It was hard for me to believe that the majority of the state's population
really understood what the new policies would mean. Perhaps, it was still possible to
mobilize the decent majority to rise up and demand these punitive laws be rescinded. What
kind of approach might arouse an audience, currently unengaged but potentially
sympathetic? My own experience in the Latin America solidarity movement had introduced me
to the power of testimony, both as a means of documenting the atrocities of illegitimate
governmental policies and of re-empowering the victims of those atrocities. I knew about
the work of international human rights monitors and was intrigued by the possibility of
attempting to frame the new welfare policies as violations of universal human rights.
Perhaps, the claim that Massachusetts' laws violated international human rights principles
might be startling enough to attract attention. I had a sabbatical coming up and decided
to spend the year seeing if I could figure out a way to implement a. state-wide welfare
and human rights monitoring project.
I chose to view the new regulations through the lens of the Universal Declaration of Human
Rights, the original statement of moral principles adopted by the United Nations in 1948.
At the outset, I expected to be recording economic human rights abuses, violations of
Article 25 of the Universal Declaration the right to an adequate standard of living.
The second and less well known part of Art. 25 also seemed particularly relevant
"Motherhood and childhood are entitled to special care and assistance. All children, whether
born in or out of wedlock, shall enjoy the same social protection." With benefits
forty percent below the poverty level pre-welfare reform, recipients were already having
serious troubles. Add time limits without any emergency assistance provisions, a family
cap denying benefits to children born while on welfare and restrictions on teen parents'
access to assistance and it's difficult not to see the legislation as a direct assault on
the economic rights of poor women and children.
I soon realized that the new regulations also severely compromised recipients' civil and
political rights. This was not new but an intensification of a long-standing situation
where the due process and privacy rights of recipients have been routinely violated. The
threat of sanctions for not identifying fathers, for children's school absences and for
not having children innoculated these new requirements flew in the face of the
non-discrimination, equal treatment, privacy and protection from assaults on ones
reputation and dignity Articles of the Declaration. Work requirements can be viewed as
indentured servitude, violating the right to freely chosen work.
I wrote A Call for Human Rights Monitors based on the contradictions between the UDHR
articles and specific features of the legislation, and began a series of meetings with
members of the welfare rights network. There was general enthusiasm for the idea although
I was warned that advocates and activists were so besieged I would have to do most of the
legwork myself. We agreed that the monitoring project would have dual aims: first, to
gather documentation which would fuel and mobilize opposition to the new laws; and, second
to serve as an organizing and educational tool for recipients. We discussed the dangers of
"documenting atrocity stories" and the need to insure that the project data were
not used, as so often happens, to dehumanize and re-victimize oppressed people.
The Welfare and Human Rights Monitoring Project was planned and carried out in partnership
with a number of advocacy and activist groups. Early on, the Unitarian Universalist
Service Committee, an advocacy organization with a legislative agenda and a long history
of international human rights work, agreed to sponsor and house the project. With the help
of a Coalition for Basic Human Needs staff member, I contacted a wide range of key players
in recipient rights groups, legal services and community organizations, and human service,
education and health advocacy groups across the state. Recipients were encouraged to write
up their own reports of human rights violations and a hot line was set up at the Unitarian
Universalist Service Committee to receive reports.
The actual process of collecting human rights violation reports was slow and labor
intensive. While stories abounded at every meeting, people told horror stories --
actually getting people to write up and submit violation reports turned out to be much
more difficult than I had anticipated. I found myself driving across the state, sitting in
offices where, inbetween emergency phone calls and other crises, I took down stories and
filled out Human Rights Violation report forms.
The first project report (Steinitz, 1996) documented five major areas where abuse was
rampant:
After the first year, the UUSC assumed major responsibility for the monitoring project,
expanded it to three other states, and issued subsequent project reports directed to state
and federal decision-makers that continue to tell chilling stories of the pain these laws
inflict on poor families, and document how rules and regulations obstruct due process,
impose unlawful sanctions, and invade the privacy and dignity of recipients. (UUSC, 2000)
The Welfare and Human Rights Monitoring Project was a roller coaster ride that greatly
complicated my understanding of the complexities of doing solidarity research. I knew from
the beginning that it would be difficult to sustain the recipient empowerment objective of
the project. I had visions of using human rights education as a way to help recipients
move from passivity and hopelessness to action, for once women learned that they did not
have to accept whatever decisions authorities made, that they could appeal and challenge,
they were in a much better position to defend themselves. But this kind of education
requires a sustained, long term commitment and much greater involvement with recipient-led
groups than I had planned for. Nonetheless, the potential effectiveness of a human rights
approach to mobilizing low-income people is confirmed by the inspired work of the
Kensington Welfare Rights Union, a Philadelphia-based poor people's group. It gathered
reports by criss-crossing the country in an Economic Human Rights Campaign bus, a tour
that culminated in a march to the United Nations where caskets filled with HRV reports
were presented to the Secretary General. If you're seeking new energy for the struggle, I
recommend "Outriders," an engrossing video on the Kensington Welfare Rights
Union. (Yates & Kinoy, 1998).
My efforts to get the media to pay attention to the results of the WHRMP confronted me
with other dilemmas, some endemic to all qualitative research and others, particularly
problematic when vulnerable people are involved. Invariably, the first question asked by
news reporters would be: how many violations have you found? They were completely unmoved
by my argument that a single human rights violation was unacceptable and looked at me with
perplexity when I asked them how many violations would be enough for them to decide there
was a problem. Individual reports were always treated as stories, in contrast with welfare
department official surveys which were always treated as hard evidence. I never could
figure out how to prove I had uncovered a statistically significant number of violations.
An additional problem was the media's insatiable demands for live bodies, actual
recipients they could interview. While I handled the issue of confidentiality by only
giving the names of the small minority of recipients who had indicated an interest in
talking to the press, I could not protect them from being misrepresented. Further, the
state Department of Transitional Assistance (DTA) had a propensity for retaliating against
"trouble-makers." I heard numerous accounts of harassment by workers and case
closings coming in suspicious proximity to being publicly identified as a recipient
activist. The official response to news stories was to demand names and details so they
could investigate the accuracy of the HRV reports. In a few instances where the cases came
from legal services and were a matter of public record, the DTA did acknowledge
wrong-doing; they invariably blamed individual workers, never the policies or the systemic
way in which they were implemented.
The issue of verification is a complex one. A major difference between the WHRMP and
international monitoring efforts is in the stance toward verification. I took the position
that reports from recipient rights groups should stand as presented without any
independent determination as to their accuracy,. a very different approach from
international monitoring where independent verification of human rights abuses is
required. Here is one of the places where my primary stance as a movement ally rather than
an independent researcher was critical and where I had to face the contradictions between
my documentation and empowerment aims.
A final dilemma I want to raise has to do with my commitment to documenting the plight of
the "disappeared," those former recipients who have become invisible, and my
difficulties in actually doing so. Official evaluations use decreases in the rolls and
increases in employed as indicators of the success of welfare reform . They ignore what's
actually happening in people's lives and make little to no effort to find non-respondents.
The non-response rate is duly noted in small print and then ignored. I expected to gather
HRV reports from some of these invisible women; in retrospect, I was naive. The paradox is
that, almost by definition, these vulnerable women, on their own without any supports,
were beyond the reach of the network of monitors. My reports came almost entirely from
women who had found their way to service, advocacy or activist groups. Reaching those who
have become invisible requires a deeper, more sustained commitment and approach, such as
that of the Fourth World Movement, an international organization dedicated to eradicating
extreme poverty and promoting human rights, whose work I will discuss later.
Participatory Action Research: Effects on Women of War-Related Violence
E: We're going to turn now to
examples of alliances with communities of long-term, sustained involvement and combine
forms of partnership with advocacy.
In the 1960s and 1970s, activist scholars and researchers who aligned themselves with the
civil rights and anti-Vietnam War movements, engaged in a broad critique of the dominant
theoretical and research models in their disciplines. One popular slogan was that our task
was to "give it' away," where the "it" referred to our special
expertise. The aim, in a sense, was to make ourselves redundant by training oppressed
groups to do their own studies, create their own service programs, build their own
economic and political institutions.
From the present vantage point in time, it is obvious that this utopian program did not
catch fire. Our disciplines were - and are - as resistant to radical, progressive change
as the larger society. But one approach, participatory action research or PAR, has
stubbornly persisted as a viable alternative despite being treated as marginal to standard
academic methods. I want to briefly review two exemplary PAR studies, both focused on the
impact of war and violence on women.
In the early 1990s, Shana Swiss, a public health physician involved in human rights work,
initiated a collaborative project with a team of six Liberian community health workers and
midwives to document and respond to the impact of war-time violence on women and girls.
(Swiss, 1995) The project was based on the "principle that local women must identify
their most pressing concerns and develop their own responses and solutions." The
extent of rape and other forms of gendered violence in the long civil war in Liberia and
in other war-ravaged countries like former Yugoslavia and Rwanda had only slowly come to
be recognized. Each woman on the team had experienced some form of war-related violence
against herself or family. The project began with their sharing their personal experiences
of suffering and grief with each other.
Finding this process helpful and wanting to make it available to other women, they set out
to learn more about the overall extent of violence against women and its consequences. As
a first step, they talked with many women in small groups about their experiences during
the war. They then designed a comprehensive survey interview on the impact of war on women
and interviewed a random sample of 200 women in the country's capital city. Based on
responses to the survey, they decided that midwives, as respected elders and community
leaders in their villages, would be most able to help women heal from their experiences of
violence.
Since many of the midwives could not read, the team developed training materials using
plays, stories, and folktales and popular education approaches to help break the silence
and counter the shame among women who had been raped. The stories allowed women to discuss
and develop strategies for rebuilding their lives and organizing their communities to
lessen violence in the future. After training, the midwives used this approach with other
women in their villages. In carrying out this project the team of Liberian women learned
how to use computers, design studies and analyze quantitative and qualitative data, and to
turn their findings into training and educational programs. In the mid-1990s, about five
years after initiation of the project, recognition of its value led to the introduction of
its training materials into the Liberian Ministry of Health's curriculum for traditional
midwives and the development of a workshop for trainers of midwives in the use of these
participatory methods.v The second study involved the collaboration of a community social
psychologist, Brinton Lykes, with a group of twenty Mayan Ixil women in a rural village in
the Guatemalan Highlands. The village was one of the many sites of mass atrocities
committed during Guatemala's 36-year war that included massacres, burning villages and
crops, brutal killings, and widespread disruption of families and communities. In her
introduction to "Voices and Images: Mayan Ixil Women of Chajul" (ADMI, 2000),
the recently published volume in Spanish and English by this collective of Mayan Ixil
women, Lykes observes that it "represents the fruition of more than eight years of
collaborative work using storytelling and, more recently photography." (ADMI, 2000,
p. 16) v The project began with Lykes facilitating workshops with the women using popular
education methods based on Paolo Freire's pedagogical approach, drawing on indigenous
practices including weaving, religious ceremonies, and oral histories combined with
participatory action research strategies. Few of the primarily Ixil-speaking women could
speak Spanish or read or write in any language, and these approaches were ways for all to
participate and communicate with each other. In the mid-1990s, Lykes showed the group
photographs of Chinese rural women from a Photovoice project. (Wang, 1994, 1999) The y
were excited by this work and decided they wanted to use photography to develop a public
record of their lives and of the impact of violence and their response to it. Through
pictures and storytelling they hoped to prevent future violence, build connections with
other women in Guatemala and beyond in similar circumstances, and as well gain new skills
and resources for themselves and their communities to respond to the material ravages of
war.
Each woman was given an automatic still camera and began taking pictures. The thematic
focus of each roll was decided in workshops among all participants. Beginning with women's
work, they progressively widened the range of topics to include their family lives, health
and illness, traditional cultural and religious practices, the war and its effects.
Analyses proceeded as they photographed with each woman selecting several photos from her
roll, telling the story of each picture to a small group, and any stories she was told by
the persons she photographed.
Analyses continued through successive group discussions that specified general themes and
problems, pared down and clustered the photos, and elaborated interpretations through
drawing, dramatization, and storytelling. Through repeated iterations of this process over
a two year period, they selected the pictures that appear in the published volume - from
the several thousand that had been collected - and crafted short stories for each one
based on their recorded notes from all their earlier discussions and analyses. Some photos
directly reflect the impact of war and violence, such as cemeteries or the exhumation of
bodies, while others depict mundane activities of daily life, such as preparing a meal or
selling produce in a markets. All are juxtaposed with and contextualized by stories of the
pain and suffering of past violence. Together the photos, drawings, and texts document
both the terrible ravages of war and the determination of the people to survive and to
rebuild their lives.
In assessing the impact of the project, Lykes points to the significant difference between
these photos and the process of taking them and other pictures by professional
photographers or tourists - a difference that both the photographers and their subjects
were well aware of. She observes that the Ixil women photographers "generated
contradictions" by challenging conventional roles for women and traditional views of
"who takes pictures of whom," thereby "reshaping the meanings of women's
work and of photography" for themselves and their communities. (p. 20) Further,
through the process of analyzing the photographs and writing the text of the published
book, the core group of participating women developed computer skills, became data
analysts, learned how to balance financial accounts. These new skills helped them develop
other projects, write grant proposals, enter public and national arenas as advocates, and
join with women in other communities in programs to improve their lives and the lives of
their families. Finally, Lykes suggests that their commitment to continue with and extend
their work reflects the deeper and shared understanding they arrived at through the long,
intensive participatory process of their collaborative project of the "multiple
causes of the violence' and its local effects while contributing to healing and
recovery processes within the group and beyond." (p. 20)
I am sure you are aware that such complex, long-term projects do not proceed smoothly.
There are many problems that go well beyond the methodological glitches of traditional
studies. Lykes emphasizes the importance of being responsive to the pervasive and
unavoidable ethical issues of such collaborations where entry of an outsider with
previously unavailable resources into a community "represents an intervention into
that community and generates consequences for the project, its participants and the
community more widely" (p. 20), such as the changes noted in the roles and positions
of the women. In addition, to return to the theme with which I began this review of PAR
studies, "giving it away" turns out to be a highly charged process - for both
giver and recipients. The question of who "owns" the study and who will control
how the findings will be interpreted, assembled, disseminated and used becomes more urgent
and more difficult to resolve as the project begins to achieve one of its primary aims,
namely, the empowerment of those who were initially on the receiving end of the
collaboration. This is a central dilemma in PAR studies - and its resolution required
extensive negotiation and renegotiation in both these studies. The dilemma underlines the
importance of recognizing that such work entails as fundamental a change in the role of
the researcher as it does in the lives of the participants.
V: Artisans for Democracy:
The Fourth World Movement The work of the Fourth World Movement is unlike other work we're
discussing today in that it is not conceived primarily as research and it has not been
carried out by academic researchers. Yet, the professional research community has much to
learn from the Movement's use of documentation methods and "best practices" case
studies. Founded in 1958 by Fr. Joseph Wresinski, a French priest who went to the squatter
settlements outside Paris to work with the poorest of the poor, the Movement has grown
into an international force of 350 fulltime volunteers who serve in 22 countries around
the globe. Starting from the premise that we must ask not what we have to teach to the
poor but rather what we can learn from them, they work at multiple levels, with families
and communities living in extreme poverty, and with society, its members and institutions.
Work at the grassroots seeks to "break the isolation of families and communities in
extreme poverty by living among them and helping them recover their basic rights and
responsibilities. " (Rosenfeld & Tardieu, 2000, xiii) It involves educational and
cultural projects, such as Street Libraries, family preschools, and Fourth World People's
Universities. It is aimed at "enabling the very poor to acquire elements of basic
security such as: keeping the family together, getting and keeping decent housing, health
care, and employment, and learning how to defend their rights." (xiv) Fourth World
volunteers write daily reports to document their activities and learnings. These records
inform a collective, reflective practice guided by questions such as: "Is this action
reaching the poorest of the poor?" and "Does it heal the whole community?"
(xiv)
Drawing on this extensive documentation, Jona Rosenfeld, an Israeli social work professor
and longtime Movement ally, collaborated with members to describe the essential craft of
the volunteers. They produced an action-oriented manual summarizing best practices -- the
values, strategies, and tactics guiding volunteers' engagement with families. Rosenfeld
characterizes these practices as "a myriad of unconventional ways of being, thinking,
and acting, first and foremost, becoming part of the fabric of the lives of the families
by sharing their daily lives and struggling alongside them for change." (xxi-xxii)
Assuming that hostile, destructive, and self-defeating behavior are responses to social
exclusion, Movement volunteers strive toward unconditional acceptance and are remarkably
persistent in their efforts to build and maintain connections with people living in
extreme poverty. Their practice teaches us the requisites for building relations of trust
with"the disappeared" and the transformational possibilities of such work.
The Movement also engages in advocacy work: "documenting, understanding and making
known the lives of the poorest of the poor, representing their interests at local,
national and international levels; and building alliances in all spheres of society."
(xiv) In contrast to the oppositional stance of my and many others' advocacy work, the
movement seeks to identify institutional allies "who are vexed by persistent
poverty" and who can play a role "in reversing the human-made course of mutual
estrangement between excluded people and social institutions."(xxiii-xxiv) They have
gained a seat at the table in European social welfare policy making circles and at the UN,
where their campaign to define extreme poverty as a violation of all human rights -- civic
and political as well as economic, social and cultural -- culminated in the designation of
Oct. 17 as World Day to Overcome Extreme Poverty.
Jona Rosenfeld and Bruno Tardieu, the volunteer responsible for the Movement's network of
allies, have compiled in their recent book, Artisans of Democracy, fascinating case
studies of twelve Movement "success" stories, projects aimed at changing the
practices of institutions of civil society. I only have time for a brief description of
one -- an eight year campaign begun by a trio of engineers, employees of EDF, a French
public utility company who were also members of the 4th World Movement network of allies,
to change their company's policy of power cutting without dialogue. ("No More Power
Cuts" in Artisans of Democracy) Deeply troubled by what the very poor had to endure
when their power was cut off, they began an effort which eventually became a major project
of the French 4th World Movement. A key task was to convince the company that power was
being cut off to people who couldn't afford to pay, not just those who refused to pay,
which was the official view. Initial work focused on building support by making the
Movement and its philosophy better known in their workplace Later, by documenting the
impacts of cuts on affected families and on customer relations staff actually involved
with cut off families, they were able to define the problem as a shared one. Eventually,
by examining all EDF studies on power cuts and customer relations, they were able to
confirm that information on the poor was indeed masked by general statistics.
Their well documented, national report, Vital Services for the Most Disadvantaged, led to
company approval of a joint exploration with disadvantaged customers to determine how to
improve relations between them and the EDF. The project resulted in a reframing of the
issue today, the EDF offers services to extremely poor families that are responsive to
their situations. The official goal is that none of these clients have their electricity
cut off . This project has the hallmark features of 4th world advocacy work: research and
documentation are key ingredients but they only become useful after the task of building
alliances has been accomplished. Instead of confrontation and polarization, the search is
for "reciprocal" interactions which benefit both sides; the basic assumption is
that overcoming extreme poverty is in everyone's interest.
Drawing lessons from their work through analysis of documentation and reflections on
practice are central activities of the Movement at this point in its history. They are
interested in exchanges with the academic community that will further these efforts.
AIDS and Accusation: Pragmatic Solidarity
E: In the early 1980s, Paul
Farmer, a medical anthropologist and public health physician, established a community
health clinic in a small Haitian village. Soon afterwards, the first cases of AIDS
appeared in the village. His book, AIDS and Accusation: Haiti and the Geography of
Blame (Farmer, 1992), reports his research on the emergence, course, and distribution
of AIDS in Haiti. In it, adopting a form of alliance with the community that he and his
collaborators later came to call "pragmatic solidarity," he reframes medical and
popular conceptions of AIDS within the historical context of slavery and Haiti's colonial
status vis-a-vis the U.S.
He proposes "an interpretive anthropology of affliction based on complementary
ethnographic, epidemiological, and political-economic analyses" (p. 13) where the
distinctive critical vantage points of each method are brought together to provide a
fuller and more dynamic understanding of the problem. But this is more than a plea for
methodological diversity, since he argues that each needs to be contextualized within
historical, socio-economic frameworks of interpretation. Thus, he is equally critical of
anthropologists who treat cultural differences in health and healing practices in
isolation from larger political and economic forces, and misread signs of oppression and
suffering as evidence for "culture" (1999, p. 7); and of quantitative health
policy researchers who ignore the effects of pervasive poverty and social inequalities on
the distribution and transmission of illnesses.
He applies this same critical perspective to explanatory theories about the AIDS pandemic
in Haiti and the U.S., arguing that in both places blame and accusation were prominent
features of social responses to it: sorcery theories at the village level in Haiti; racism
among health scientists and the popular media in the U.S.; anti-colonialist theories among
Haitians in response to accusations that Haiti was the site of origin of AIDS. He points
to both the flaws and functions of each of these responses, e.g., of sorcery theories as
an effort by people faced with severe illness to find some understanding and effective
therapeutic response; of conspiracy theories as the "rhetorical defense of powerless
victims"; and of the U.S. response as feeding on "xenophobia and above all
racism." (1992, p. 247) Only the latter blamed the victims, and led to Haitians being
classified as a high risk group by U.S. Center for Disease Control, the banning of blood
donations by all Haitians, restrictions on their immigration to the U.S., and other forms
of discrimination.v Farmer's study was instrumental in turning the U.S. accusatory model
of explanation on its head, leading to the reversal of U.S. discriminatory policies:
rather than Haitians being the source of the AIDS virus, current understanding of its
epidemiology indicates that it came to Haiti and other Caribbean countries from the United
States "perhaps especially through tourism." (1992, p. 260) This is an instance
of an effective critique of the "official story" through the deconstruction of
racial myths and stereotypes. Further, the Haiti/AIDS project initiated a series of
studies of the impacts on health of social and economic inequality by a team of
researchers in the Partners in Health institute founded by Farmer and his collaborator Jim
Yong Kim. The detailed comparative case studies reported in their recent book, Dying
for Growth: Global Inequality and the Health of the Poor (Kim et al, 2000) lead them
to conclude that: differentials in rates of infectious diseases are biological expressions
of social inequalities. (Farmer, 1999)
The work by Farmer and his colleagues is a powerful example of both the theoretical
understanding and practical benefits that may be gained by the fusion of advocacy with
partnership. As public health physicians in a relationship of "pragmatic
solidarity" with the poor - a position that Farmer notes draws its inspiration from
Liberation Theology - they both speak for their patients from a critical historical and
political perspective and provide health services that reflect communities' own
definitions of their needs. The dilemma posed by their work to which I want to call
attention has to do with the critical stance vis-a-vis people's own views and explanations
of their experiences - that is expressed in Farmer's analysis of Haitian sorcery and
conspiracy theories - which contrasts with the pervasive view among qualitative
researchers, for whom taking the perspective of our respondents is the fundamental
touchstone of our work.
We place a premium on listening to and getting our respondents' "voices" heard,
of using their understandings of their experiences as the basis for our theories, of
"member checks" of our interpretations as tests of their validity. Although the
ethnographic component of Farmer's study relies on his observations on the ground and in
the clinic, and he presents Haitians' stories about the appearance and impact of AIDS and
their explanations, he treats their accounts from a critical vantage point rather than as
the "truth" to which he must align his own interpretation. Thus, he frames his
analysis of their "sorcery" and "conspiracy" theories, within a
historical and political context just as he does the theories of public health experts in
the U.S. and other countries.
Another recent example of the contextualization and critical re-interpretation of
respondents' own understandings of their circumstances is Pierre Bourdieu's report of his
large-scale study of poverty in France, based on qualitative interviews. (The Weight of
the World: Social Suffering in Contemporary Society. Bourdieu, et al 1999/1993) The
book is a radical critique of what Bourdieu refers to as the "abandonment by the
state" of poor people by the French government's neoliberal economic policies, and it
caused a political furor in France. Within this radical political perspective and in a
work of committed advocacy, Bourdieu nonetheless argues that his respondents' views do not
provide an adequate basis for theoretical explanation or practical action. Asserting that
his respondents rely on the "tacit presuppositions of common sense" and do not
"possess a science of what they are and what they do" (p. 620), he advances the
claim that it is the sociologist's task to develop such a science by acting as a
"midwife" who challenges common sense views and brings to consciousness the
"real bases of the discontent and dissatisfaction" which people experience at a
deep level but are unaware of and therefore express in inappropriate forms.
This dilemma, between taking our respondents' understandings at face value as representing
the "true" explanation of their situations vs. a critical analysis that locates
their views within a social, historical context, requires more discussion than it has
received among those of us doing solidarity work. We are wary, for many good reasons, of
further delegitimating their ways of seeing and understanding their experiences and their
social worlds. Nonetheless, our disciplinary training provides theoretical and
methodological tools, and the skeptical orientation of the research enterprise, to
critically analyze and unpack the assumptions underlying social discourses and the
culturally-grounded categories and theories that we live by. Does this critical stance
have a place in the research we do as solidarity work, or is it simply a sign of our
traditional academic arrogance? Is it possible to be simultaneously a critic and an ally?
Are there ways to make our critiques useful to those with whom we ally ourselves? What are
the risks involved and how might we deal with them? These are not questions I would
presume to settle, but I hope they will be part of our discussion.
Conclusions
E: Our primary intent in this
paper has been to encourage you to become academic allies, to join forces with activists
in the struggle for social justice. By reviewing a variety of approaches to solidarity
work, we hoped to motivate you to look for opportunities in your institutions and
communities that would best fit both your academic interests and skills, and your
political perspectives. We also highlighted recurrent dilemmas in such work to alert you
to the complexities of the dual role of an activist-researcher.
In closing, I want to return to the identity Vicky assigned me early on as primarily a
researcher - a characterization I did not contest. What that has meant for me is that I
have learned to live with contradictions: as an academic scholar, engaging in a critique
of the current state of theory and research in psychology and the social sciences, while
at the same time, as an activist researcher, making claims for the adequacy of studies
that may advance our political objectives. I continue to pursue my specific theoretical
and research interests in studies that are not directly linked to my collaborative work
with activist groups. This is a different path than that taken by others - including Vicky
- for whom the research they do as activists has moved to the center of their academic
work. They have integrated the two roles, which for me remain in dialectic tension.
These are but two of the many alternative modes of doing solidarity work, each of which
strikes a different balance between our activist and academic identities. And for many,
perhaps all of us, this balance shifts over time in response to changing circumstances.
Since we want, and need, more and more of you to find a way into solidarity work, I hope
you will not worry yourself into inaction because of the risks, difficulties,
uncertainties, and dilemmas that are involved. Based on my own experience, I can assure
you that these problems recede when they are placed within the broader context of the work
you do with others in the important task of making a more just and humane world.
V: We are entering a
political era when our faith in the efficacy of activist research may be more sorely tried
than ever before. For me, as I am sure is true for many of you, the struggle to believe
that what I am doing will make a difference has been a long one. But in recent years, I
have become clearer about what I can contribute as an academic ally and researcher working
in solidarity with those who are being treated unjustly, even as I remain deeply worried
about whether those of us who are committed to achieving a more just society are going to
succeed.
While part of our purpose today has been analytic, to examine the complexities and
dilemmas of doing solidarity research, I have to admit that I came in good measure to
proselytize, to move you to action. I want to close by emphasizing the critical importance
of challenging the dominant definitions of what the problem is. The myths that have been
perpetuated about for instance the success of welfare reform, as measured by declining
numbers on the rolls, and the failure of public education, as defined by arbitrary high
stakes test scores, to mention the two I know best, must be contested in both professional
and political contexts.
Too many academic researchers have bought into the official measures. Virtually all the
articles in the latest Journal of Social Issues (Zuckerman & Kalil, 2000) on "The
Impact of Welfare Reform" conclude that results to date are mixed. They note that
while the numbers employed have risen, these women have not moved out of poverty and some
indeed are suffering. The neutral tone of these reports may seem like professional
objectivity. To me, it reflects a loss of a moral compass how many Human Rights
Violations do we need before we conclude, not that more research is needed, but that
something is seriously wrong.
In the political arena, we must be vigilant and outspoken critics of the official stories,
of the clever disinformation campaigns used to justify regressive social policies.
Elliot and I wish to thank you for your attention and invite you to join the dialogue.
References
ADMI (Asociacion de la Mujer Maya
Ixil). (2000). Voices and Images: Mayan Ixil Women of Chajul. Chajul, El Quiche,
Guatemala: ADMI/Asociacion de la Mujer Maya Ixil (U.S. distributer: EPICA -epicabooks@igc.org). In Spanish and English.
Introduction by M. Brinton Lykes.
Bourdieu, P. et al. (1999/1993). The weight of the world: Social suffering in
contemporary society. Stanford, CA: Stanford University Press. (Translated by P. P.
Ferguson, S. Emanuel, J. Johnson, S.T. Waryn).
Edin, K. & Lein, L. (1997) Making ends meet: How single mothers survive welfare and
low-wage work. New York: Russell Sage Foundation.
Farmer, P. (1992) AIDS and accusation: Haiti and the geography of blame. Berkeley,
CA: University of California Press.
Farmer, P. (1999) Infections and inequalities: The modern plagues. Berkeley, CA:
University of California Press.
Kim, J.Y., Millen, J.V., Irwin, A., & Gershman, J. (Eds.). (2000). Dying for
growth: Global inequality and the health of the poor. Monroe, ME: Common Courage
Press.
Martin-Baro, I. (1994). Writings for a liberation psychology. Cambridge, MA:
Harvard University Press. Foreword by Elliot G. Mishler. (Translated by Adrianne Aron and
Shawn Corne).
Rosenfeld, J. M. & Tardieu, B. (2000). Artisans of Democracy: How ordinary people,
families in extreme poverty, and social institutions become allies to overcome social
exclusion. Lanham, MD: University Press of America.
Steinitz, V. (September 1996). Interim Report: Welfare and Human Rights Monitoring
Project. Cambridge, MA: Unitarian Universalist Service Committee.
Swiss, S. (1995). Violence against women in war. Women's Rights International.
(Flyer for lecture at Boston University School of Medicine, November 27, 1995).
Unitarian Universalist Service Committee. (September 2000). Report on 1998-1999 Data:
Welfare and Human Rights Monitoring Project. Cambridge, MA: Unitarian Universalist
Service Committee.
Wang, C. & Burris, M.A. (1994) Empowerment through Photo Novella: Portraits of
participants. Health Education Quarterly, 21(2), 171-186.
Wang, C. (1999). Photovoice: A participatory action research strategy applied to women's
health. Journal of Women's Health, 8(2), 185-192.
Yates, P. & Kinoy, P. (1998). Outriders. (Video documentary on the Kensington
Welfare Rights Union). New York: Skylight Pictures.
Zuckerman, D. & Kalil, A. (Eds.) (2000) "The Impact of Welfare Reform." Journal
of Social Issues, 56, 4, 579-820.